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Amy had her last colonoscopy in November 2019. 

Eight months later, she was diagnosed with stage IV colon cancer that had gone undetected.

Unfortunately, her story is not unique.


Even with heightened cancer monitoring, thousands of patients develop IBD-related colorectal cancer every year. Like Amy, up to 50% of them are not diagnosed during their most recent cancer surveillance colonoscopy. 

Because most IBD patients do not develop cancer -- and those who do make up only a small percentage of overall cancer cases -- research in this area is underfunded.

But the unmet need is clear

Colon cancer that is caught early can be cured. But late-stage cancer is almost always fatal and IBD-related cancers tend to be particularly aggressive.

Amy was diagnosed a few days before her 36th birthday. She died before her 37th.

We established the Amy Sobel Foundation because we know we can do better.


Our work will support scientific research, education, and advocacy with an emphasis on cancer prevention and early detection.

Read more stories about some of the many IBD patients who develop colorectal cancer.


More information about our first research effort can be found on our Projects page.

Our patient education resources are here.


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